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Country: Cameroon, Central Africa
Name: Joseph Lukong Tardzenyuy
Zonal Co-ordinator of Strategic Humanitarian Services, South West Province
Date of birth: 6th July 1965
Place of birth: Kuintar, Mbam, North West Province

Office: Speak Clear Association of Cameroon,
P.O. Box 9598, Douala, South West Province
EMail: Lujotar@yahoo.com

 


My home was in a small rural village with no potable water, electricity, telephone, good roads or other modern means of communication. I was born to the family of late Papa Sebastian Lukong and Mama Celina Kibvre, who were peasants farmers and Christians of the Roman Catholic Church. My father was a polygamist as this type of marriage is accepted in our tradition and he had three wives with a total of 21 children. All of us his children were brought up in accordance with the teachings of the Roman Catholic church and we were all baptised, received first holy communion and later the sacrament of confirmation.

All of us were breast fed by our mothers for a period of about two years and we slept with our mothers on bamboo beds without mattresses in their kitchens that served at the same time as their parlour and sitting rooms.
As we were many, survival was always a struggle for us. Our mothers grew food crops that were used in nourishing us and part sold to provide for our other needs. Our father grew cash crops such as arabica coffee and colanuts which he often transported on head load and sold in the near by towns to pay our school fees and provide for our other needs.

 

In our village the stable food is corn fufu made from corn which is eaten with huckle berry or other vegetables and we could eat this for the 5 of the 7 days of the week. My father, though illiterate, made sure that all of us completed elementary primary school that is done here in Cameroon for a period of seven years. With his limited means, he could only afford to sponsor myself and my elder brother above the primary school level. We are now charged with the heavy duty of taking care of the children left behind by my late father.

I have to mention here this unique characteristic peculiar in our family which is that of stammering. Of the 21 of us, 17 are stammerers and paradoxically neither my father nor any of his wives stammer. In my parental family tree spanning for four generations, there are more than 100 individuals of which 42 are stammerers. A human geneticist interested in studying the genetics of stammering from the National Institute of Health in the US has shown an interest to study our family. He has made two visits to Cameroon in the year 2002 and collected blood and speech samples from the 42 members of my family. He is presently studying the said samples in his laboratory in the US. An article about this study was recently published in the website of the STUTTERING FOUNDATION OF AMERICA SFA. Also a paper has been presented about stammering in our family by myself at the recent symposium on stammering on the Internet.
Schooling for myself as well as my relations has always been a nightmare. We grew up in a society that is very insensitive to the plights of those with disabilities, including stammering. In school we were often looked upon as outcasts and were often an object of ridicule, teasing, bullying, name calling and other unacceptable behaviours by our school mates and even some teachers. I remember how often I use to fight or cry when teased or bullied by these persons.
In 1986, one incident occurred in my family that I will never forget up till today. One of my cousins who had a fiancee who wanted to marry her was refused marriage by the parents of the boy on the pretext that my cousin, since she was a stammerer and since stammering seems to be hereditary in our family, was going to transmit the 'stammering virus' to the progeny. This demoralised her and she wanted to commit suicide. That pushed us to try to create a self help structure to sensitise people about stammering.
This is how the SPEAK CLEAR ASSOCIATION OF CAMEROON SCAC came into being. This is a self help non profit making charity recognised by the competent government services in Cameroon to group stammering persons. I have to point out here that the situation of stammering persons in Cameroon is very difficult due to the absence of speech professionals to take care of them. In the absence of these persons, many stammerers resort to the available traditional, crude and at times very unpleasant methods of cure. Due to the good work that SCAC, whose activities I co-ordinate, has done in Cameroon, it has been admitted as a member of the INTERNATIONAL STAMMERING ASSOCIATION ISA and the second country from Africa to be a member of this Association. Since February 2002, I have been admitted as a full member of the INTERNATIONAL FLUENCY ASSOCIATION IFA. More information about SCAC can be got from our website at www.stuttertisa.org/cameroon.
Further information about stuttering can also be obtained at http://www.stutteringhomepage.com.

How FIOH has helped us
It is thanks to FIOH's UK Chairman that we contacted his daughter, Clare, a speech therapist from the West Swindon Health Centre who is visiting us as from the 19th October to the 3rd of November 2002 to see how she can help us with her speech therapy knowledge so as to fill the vacuum that exists here due to the absence of modern speech therapy for stammerers.
Not withstanding the difficulties that I faced in school I was able to go through the Secondary School and had my GCE O level in 1982, the GCE A level in 1984 and a Bachelors degree in Law from the University of Yaounde in 1987.
Being of the marginalised and less privileged class, it was always my dream to work for people who are marginalised. That dream was realised when in 1995, I applied and got my membership into a local NGO here called STRATEGIC HUMANITARIAN SERVICES (SHUMAS) which is partner of FIOH.
Later, I was appointed Zonal Co-ordinator of this association in two strategic provinces of Cameroon, ie the Littoral and the South West Provinces.
As Co-ordinator of SHUMAS in this area I have supervised SHUMAS projects in these regions aimed at fighting against poverty amongst the youths and women groups and supervised activities aimed at conserving and protecting the ecosystem of the Tropical Evergreen forest.

PERSONAL TESTIMONIES